Thursday, November 09, 2006

Wisdom

Psalm 111:10 - "The fear of the LORD is the beginning of wisdom; all those who
practice it have a good understanding. His praise endures forever!"

It seemed appropriate to start tonight's post with the topic of wisdom, because we sorely need it. Our appointment today with Dr. Bendell went fine, and we liked her well enough. She was very encouraging about the lymph node results, which actually weren't really even lymph in origin. She was encouraging that the long-term prognosis is very good. She was emphatic that the correct course of therapy is to do the stomach surgery to remove the antrum of the stomach.

Ugh.

(Heavy sigh)

So now we come to it, to the deciding point. Mayo says do not, under any circumstances, take out her antrum. In fact, I got an email from the doctor at Mayo last night reiterating that point (Dr. Thompson). The science behind this approach makes wonderful sense to the medical side of both of us. The desire to avoid major surgery, with a 6-9 month recovery, is obviously attractive. The avoidance of the risk of permanent side effects in her digestive system would be great.

At Duke, every doctor, physician's assistant, and nurse practitioner have all said to do the surgery. No exceptions. They have stopped just short of calling Mayo's "Surveillance Therapy" approach ridiculous and irresponsible, but they've come close. (Mayo, on the other hand, essentially called Duke's surgery approach barbaric and uneducated.) The reasoning behind Duke's approach is a bit more philosophical, and unfortunately for us, the folks who ultimately have to make this decision, it also makes absolutely perfect sense. Their reasoning is that she has cancer; it is confined to one location. If we do this surgery, the risk of further complications or spread are permanently eliminated. It is gone, won't come back, completely finished. She never worries about it again.

Also, and this is a part of medicine today, I am sure that everyone at Duke knows that if they recommend the surgery, there is no risk of me coming back 5-10 years from now with a team of lawyers because they failed to act and prevent the early death of my wife. If they go with surveillance, they are convinced that there is some risk of shortened life; why would we chance it, and why would they risk it legally? I just know that is part of their thinking.

Duke agrees that the risk of metastasis is very low, but refuses to say impossible. Mayo says they "think" it is impossible. Dr. Bendell said that if Dee Dee were 72, she would say not to do the surgery. But as young as Dee Dee is, it just doesn't make sense to leave the cancer inside her body when you have a guaranteed way to get it out forever, according to Dr. Bendell. By the way, Bendell is probably in her mid-thirties, female, and fairly thin (not as thin as Dee Dee, but slim). So, she fits the profile for higher risk of post-operative complications that Dee Dee would be at risk for. When asked today what she would do, Dr. Bendell did not hesitate: "I would have the surgery as soon as possible, and be done with it."

We told Dr. Bendell that we would take everything under advisement, but there was no way we were deciding this thing today. We got (more!) bloodwork done today - seven vials worth. They are scheduling the last study they want to do (Mayo agrees), an endoscopy with ultasound of the possible sub-surface tumors in the stomach. Then, we will talk a lot, pray even more, and decide what to do. Obviously, we don't get to simply refuse to decide; that then would be the decision to simply observe. We discussed, briefly, getting yet another opinion (from either Johns Hopkins or from MD Anderson in Houston); but to be honest, starting over at another center made us both feel a bit nauseous. We may revisit that idea later.

By the way, if we go with Mayo's approach, basically for the next several years Dee Dee would get endoscopy 3-4 times a year, CAT scan once a year, PET scan once a year, and octreatide once a year. After that, they would try to spread things out, assuming everything was holding stable. If the lesions grow in size or number, there is increased risk of internal bleeding. If they metastasize, there is risk of shortened life span. Obviously we can come back and do the surgery later, but with any cancer there is a "too late," although evidently that is a low (Duke) to no (Mayo) risk here. If we do the surgery, the cancer risk is gone, but there is between a 5% risk of the permanent digestive problems (per the surgeon, Dr. Pappas), to a 15% risk (per Bendell), to a 50% or greater risk (everyone at Mayo).

So we pray for wisdom. I pray for the courage to be a godly husband and lead my wife even in the scary times and the scary decisions. The Bible says that fear of the Lord is the beginning of wisdom. Proverbs 8:13 - "The fear of the LORD is hatred of evil. Pride and arrogance and the way of evil and perverted speech I hate." So, I pray that we would fear God more, in the correct and proper way. I pray that our reverence and awe and humility before His perfection and holiness would grow. I pray that we would be more convicted of our sinful nature, and of our specific sins, in light of His holiness. This is proper fear of God. And this will lead to greater wisdom. It is a mathematical certainty. Fear of the Lord is the beginning of wisdom.

People ask me if we want to flee, to just get away from this. No! I didn't ask for it, but I have asked God to take it from us. And He has repeatedly said, "NO." His answer, given that He has promised to only do good for us, is good enough. I will not deliberately try to avoid His plan. And by the way, I am not nearly brave enough, or good enough, on my own to stand up to this. It is Christ in me, it is the Holy Spirit comforting me, that enables me to talk about this candidly, to face it daily with sanity and some humor. Our younger kids sing, "My God is so big, so strong and so mighty, there's nothing my God cannot do." And while that does mean that He could take the cancer away, it seems in our case to mean that He can empower us to live as if Scripture is true, even when life circumstances turn scary and sad and hard.

That's really all I/we are doing: living daily as if the Bible is actually true. After all, we're Christians; shouldn't we live this way?

Tony

Proverbs 2:6-7 - "For the LORD gives wisdom; from His mouth come knowledge and understanding; He stores up sound wisdom for the upright; He is a shield to those who walk in integrity"

Proverbs 8:14 - "I have counsel and sound wisdom; I have insight; I have strength."

10 comments:

Viehman Family said...

May the Lord speak to you plainly on this decision through His word.
The 2 sides seem so opposite that I believe and will pray the Lord directly give you an answer.

Greg V
Isaiah 26:3-4

Anonymous said...

Dear Tony & Dee Dee,
Reading through your words and listening to your clear description of the decisions before you, I found myself wanting to "know" the right choice, or the "right" words to say to help you make those choices ... and realizing that only God can provide that strength and guidance. So I will continue to pray for wisdom and discernment and knowledge, for you and the medical professionals giving you alternatives.

Then I went to Mama's copy of "Naves Topical Bible," and searched through references to knowledge, decisions, and wisdom. Strangely enough, the words that speak to me now all came from the book of Job.

"28:10 -- His eye seeth every precious thing. 24 -- He looketh to the ends of the earth, and seeth under the whole heaven.

31:4 -- Doth he not see my ways, and count all my steps?

34:22 -- THere is no darkness, nor shadow of death, where the workers of iniquity may hide themselves. 25 -- He knoweth their works.

36:4 -- He that is perfect in knowledge is with thee. 5 -- He is mighty in strength and wisdom.

37:16 -- Dost thou know ... the wondrous works of him which is perfect in knowledge?

42:2 -- I know that thou canst do every thing, and that no thought can be withholden from thee."

Trusting in God's power and love for you, to guide you and walk with you along the paths ahead ...

Love,
Linda Lee

p.s. Greetings and good wishes to you from Joe (I ran into him Monday at UNC Hospitals.)

Anonymous said...

Yo are seeking wisdom from God-he will give you wisdom to know what to do. We will be praying for you!

Kim said...

That last comment was from me(kim at www.lifesong-kim.blogspot.com) I don't know why it didn't show that.

Anonymous said...

Clarks:

It is my prayer that God will take this cancer away from Dee Dee and restore her back to health. It is also my prayer that if this cup will not pass from her that God will continue to strengthen her body, mind, and soul, to prepare her for whatever lies ahead. Knowing God is with you all the way. Continue seeking His will and He WILL show you the way.

May God bless each of you on this journey. Love Cindy Griffin

Anonymous said...

Tony and Dee Dee
We are praying for wisdom and clear direction for you. The Lord will give you peace as He provides the answer. Only God can provide you with both an answer and peace. You are in His hands as you have been every day. He already knows the outcome. Trust in Him.
We love you all -
Art and Sydney

Hope Stricker said...

Tony and Dee,
You are constantly in my thoughts and prayers. Please let me know if there is anything that I can do (child care, food, etc.) You both have tremendous faith and that is an awesome testimony. I love you both so very much. Take care.
Love,
Hope Stricker

Anonymous said...

Tony and Dee Dee,

During my quiet time this week, I read Hebrews 12:1-2, which follows the "Hall of Faith" chapter.

"Therefore, since we are surrounded by such a great cloud of witnesses, let us throw off everything that hinders and the sin that so easily entangles, and let us run with perseverance the race marked out for us. 2Let us fix our eyes on Jesus, the author and perfecter of our faith, who for the joy set before Him endured the cross, scorning its shame, and sat down at the right hand of the throne of God."

Your words made me think of this passage, not because of sin in your lives, but because of what I gleaned from this passage yesterday, that being that if God, in His all mighty power tried these men of the faith and provided the means for righteousness, this is what He will do for us in our lives. We can take great comfort that, in the most difficult of circumstances (Abraham on the mountain with Isaac - ! WOW!), He will show the way.

I have no doubt that your faith will pass this trial and you will emerge from this immeasurably stronger in the faith than when you entered. As James says in 1:2-6

2Consider it pure joy, my brothers, whenever you face trials of many kinds, 3because you know that the testing of your faith develops perseverance. 4Perseverance must finish its work so that you may be mature and complete, not lacking anything. 5If any of you lacks wisdom, he should ask God, who gives generously to all without finding fault, and it will be given to him. 6But when he asks, he must believe and not doubt...

What does this all mean? Simply that, by remaining faithful to the Lord, you are in the will of God and He will provide all you need, as long as you believe and do not doubt. Sure, we feel uncertain at times, and even doubtful, but that's of our own ability to know. We have NO DOUBT that God is all powerful and all knowing and will direct and sustain you through these trying times.

May His blessings be new every day for you and your family.

Joe and Michelle

Carol said...

Tony and Dee Dee,

Praying for the 'peace that passes all understanding' to absolutely invade your hearts and minds in these decision-making days.
Is. 43: Fear not, for I have redeemed you; I have summoned you by name, you are min. When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the firs, you will not be burned; the flames will not set you ablaze. For I am the Lord, you God, the Holy One of Israel, your Saviour."

A line in one of our favorite songs reads, "For He is God, and I am not." Thank God! He holds you in the palm of His hand, and your names are written on His hands.

May the deep peace of Jesus settle on you,
With love, Carol and Daryl

Kim said...

I know this must be a hard(understatement) decision for you...I shared all of your ordeal with my husband last night and we prayed for you guys....that you would have wisdom to KNOW what to do. Still praying today! I have a video on my blog that might encourage you guys...I love the song and thought of you! It is one post down. Stay strong in the Lord and in the strength of HIS might.