Thursday, October 26, 2006

A very long, very good day

Usually in a good story, the author doesn't give the ending until, well, the end. (Except in Pulp Fiction, or Reservoir Dogs, but that reference is probably just for a few, like Randy! I actually thought about naming each of the people we met with today Mr. White, Mr. Pink etc....) Well tonight, I'm giving the ending first. Today was a very good day! It was long, but there was nothing terribly painful or miserable about it, and the outcomes were better even than we had hoped.

We started at 10:30 a.m., and finished at 6:00 p.m. We actually spent 5 hours sitting in one exam room! We joked that for us lately, that might qualify as a date. (I then observed that the exam room door had a lock, but Dee Dee didn't think that was terribly funny.) Every 60-90 minutes someone else would come in and ask a bunch of questions, marvel that this young, fit woman had any serious health issues, and assure us that everything was going to be fine. We met with three docs before the end of the day. Dr. Garst was great; she just sat up on the exam table while we sat in the chairs, and talked. She was friendly, warm, and encouraging. She also said pretty quickly that she was the least important "doctor-piece" to the puzzle, because her specialty is lung cancer. She saw herself more as the facilitator/coordinator.

Dr. Garst then went and personally found a doc we had no appointment with whatsoever, but this was the doc that Garst felt would be the best one at Duke to help decide about the stomach, after the node has been dealt with. This was Dr. Johanna Bendell, a medical oncologist specializing in digestive cancer. She just stopped by to meet us, and couldn't really get into the medicine yet, but was also very engaging. Then (well, 60 minutes later) Dr. D'Amico's personal physician's assistant came in. He stayed for at least 45 minutes, and was fantastic. He connected with both of us, and you just felt a trust with him right away. Further in the conversation, he talked about his faith, and asked about ours! Every doc eventually picks up on the fact that we are in a medical profession; every Christian picks up on the fact that we are believers.

Here's where it starts to get medically great. Dr. D'Amico has invented a surgical technique that he is extremely confidant will allow him to get the entire node out with a much less invasive procedure. He will use a video-microscope and two small incisions (1-2 inches each) to get to the tumor. They will deflate her left lung for the surgery, re-inflating afterward. They will leave a drainage tube in her chest until it stops draining any fluid, about a day or so. She will be in the hospital for 1-3 days instead of 4-5 days with thoracotomy (the one we actually thought was the best option) or 2 weeks with the most serious approach. She will be on prescription pain meds for about a week, as opposed to a month the other way. He has done about 2500 of these surgeries, and feels almost certain this will work. Praise God! Finally, he is going to do this surgery at Duke on Monday, 10/30, which is much sooner than we had thought Duke's wheels would spin.

We still have some hurdles to clear. This whole thing is too big to finish all at once. That's the old metaphor, you can't eat an elephant at once, you have to eat a bite at a time. Today was a really good day for progress, for encouragement, and for basic good news. We still have to find out what the node actually is. We have to decide what to do about the stomach. Also, that was a second lesion lower in the chest, and we have to investigate that at some point. Today, they were not terribly worried about this smaller spot. We'll get to all those things, but for tonight we will sleep a bit better, and enjoy the good from today.

Thanks for praying today. "The prayers of a righteous man availeth much." We are grateful that the are hundreds of righteous men and women praying much, availing much, on our behalf. We are aware of people in Peru and Sweden, South Africa, Slovakia, and Germany, and all over the good ol' USA praying for us. Our prayer is that God would richly bless you as you walk this path with us. Thank you! Thank God!

Tony

8 comments:

Anonymous said...

Dear Tony & Dee Dee,
Thanks for posting the "Good News" line at the very first! (even in the title) ...

Praise to our God for His goodness to you today especially --- for giving you patience and humor in the midst of a very long day at a hospital --- for connecting you with good doctors, even ones you didn't know to expect to meet --- and particularly for the one with the experience & expertise to make this first surgical path simpler than we dared hope.

I didn't catch a timetable for this, but trust that it will be soon. Can I also assume that you are likely to stay at Duke rather than going back to Mayo?

Rest easy tonight, dear cousins. The God of all peace give you that calm that will allow your bodies and your minds to sleep.

"I thank my God every time I think of you; whenever I pray for you all, my prayers are always joyful, because of the part you have taken in the work of the gospel from the first day until now. Of this I am confident, that he who started the good work in you will bring it to completion by the day of Christ Jesus. ... ... And this is my prayer, that your love may grow ever richer in knowledge and insight of every kind, enabling you to learn by experience what things really matter. Then on the day of Christ you will be flawless and without blame, yielding the full harvest of righteousness that comes through Jesus Christ, to the glory and praise of God." Phillippians 1: 3-6, 9-11

Love,
Linda Lee

Anonymous said...

God is so good. Surgery on Monday
after many churches and many saints praying in His house on Sunday for DeeDee's complete healing.

Anonymous said...

Paise the Lord!! We serve an awesome God. And I do so love the good news first!! Praying for you all. I love you -- Miss Nan

Anonymous said...

Tony and Dee Dee,

What a Great God we serve! We pray that everything goes well on Monday. We pray that God grants you both and your children peace and comfort as you prepare for this step!

Love you all!

Kevin, Jessica and Karrigan.

P.S. I can only imagine Dee Dee's reaction to the "door locking" comment!! Sounds so Tony!! Love you guys!

Anonymous said...

WOW! God is orchestrating a beautiful ballet right before your eyes (and our eyes to witness with you!!)

Just further confirmation that you made the right decision to come "home, sweet home".

He is so faithful to introduce you to a doctor who actually INVENTED this procedure which will be much easier and better recovery time. AWESOME!!

It's no wonder why yall had so many children if Tony was thinking of intimacy in such a time as this...hilarious! You are lucky that the Doctors didn't need to do surgery on you, Tony, as DeeDee could have really hurt you on that one!! Hee!

Thanks for sharing so we can be PRAISING and PRAYING with yall!

The Fuller's
Auburn, AL

Anonymous said...

So very happy for this good day you've had! Praise God for the doors He opened and for the connections you made! By the way, you can also add Canada...I have a couple of faithful ladies praying for you from "up North!"
Love ya'll,
Donna

Anonymous said...

Tony and Dee Dee,
Thanks for sharing your honest reactions to this path God has set you on...we love your openness and authenticity...and we are inspired by the strength of your faith in this trial. We will continue to pray for complete healing for Dee Dee and for God to use this journey in great ways in the lives of your children--and we'll especially be keeping in mind the surgery tomorrow. Know that we love you! Dan & Angela Parlin

Beth Grose said...

Dearest Dee Dee and Tony,

I Cor 14:33 "For God is not a God of confusion but of peace." I have been praying that the puzzle pieces would fit together and it appears that they are! Praise the only true God! God is always that still peaceful voice that gently says this is the way, walk in it. He will lead you with his peace and I trust Him for this in your lives.
Tony, in your spare time you should write a book! I love reading your entries. Of course I love reading factual science material so maybe my opinion is not worth much.

Love you all,
Beth