Tuesday, October 17, 2006

Tuesday night

Hey folks. I don't really know how to write this one, because I am not really sure how to summarize today. First, some praises. Dee Dee definitely felt better today, and was able to get the octreatide scan done today. She thought of my brother during the scan, because Randy is fairly claustrophobic and this one lasted three hours, with her in a device that was inches from her face the whole time. The results basically confirmed....everything we already knew. She has stomach things and a lymph thing.

We met with the surgeons this afternoon. The stomach surgeon adamantly insists that the stomach tumors are not that big a deal. He wants to watch them every year, essentially forever, but that is all he wants to do.

I think we started to feel a little too happy, because when the chest surgeon came in his news was more than a little deflating. He looked at everything, and said, "That node is no good, and has to come out." He feels that it is as large as an egg. He discussed the possibilities, and while he felt that it was most likely carcinoid, it could be a lot of other things. On that list are breast cancer, lung cancer, and lymphatic cancer.

He wanted to do the surgery tomorrow. This would be a major surgery, with a lot of pain and a fair bit of risk, because it is in contact with two very important nerves (one to her vocal cords, one to her diaphragm, which controls breathing), and it is adjacent to her aorta and her heart. If it is cancerous, then it may be difficult to remove because it will be "attached" to everything it touches. She will be in the hospital for 3-5 days, with a lot of pain. She will have a drainage tube in her side, and until it stops draining she can't leave.

Because of the time of day, we had about 30 minutes to decide. We prayed, cried, and talked. Medically, it made sense to do it here. It is the fastest way to find out the answer; it guarantees that the same pathologist would look at both the stomach tumor slides and the lymph slides; we really liked the stomach guy here (Thompson); lots of reasons.

We decided to come home. If everything goes well, she preferred to have it done at home, where we have friends and family. More, though, we didn't prepare emotionally for major surgery. We didn't feel that we had adequately prepared our kids for Mom having that level of surgery. Bottom line, Dee Dee needed one more very special hug with her kids before a surgery that big. She told me she would follow my decision, but I could see in her eyes and hear in her voice that the thought of doing the surgery tomorrow was hurting her deeply. In the end, that was all I needed; we are coming home. We'll meet with the Duke surgeon next week on Thursday, and have surgery sometime after that.

So all the medicine here is done now. Our flight is not until Thursday, so we will try to fill the hours until then. There is not a lot of site-seeing to do here in beautiful Rochester, MN. We will continue to praise Him for His mercy, and His goodness. We will continue to trust Him as our Father who loves us perfectly. We will count the hours until we finally know what the node is all about. We pray that it might still be something other than cancer, and that she would not need more surgery or chemo/radiation. Thank you for your prayers and love over the past month (which, by the way, has actually lasted about 6-7 years), and especially these last few days.

Tony

10 comments:

Anonymous said...

Hey Guys!
I just read your blog and mom has been informing me of the problems. We are praying. As I was sitting here wondering what words of comfort I could tell you, I went to a scripture that God laid on my heart.

Isaiah 43:18,19
"Do not remember the former things, nor consider the things of old, Behold I will do a new thing, now it shall spring forth; shall you not know it? I will even make a road in the wilderness. And rivers in the desert.

Just remember "God has a plan" and He knew you could handle this!!

Love & prayers,
Sherry Dyson Parrish

Anonymous said...

Hello Tony & Dee Dee:

You both have been in my thoughts and prayers so much over the past few days, but especially today. Just another reminder that there are many prayers being lifted up for all of you during this time. It's my prayer that God will remove this "thorn" from your body and there will be no need for futher surgery. Of course, if God deems this for you I know He will give you the strength and wisdom to face it. Our God is an Awesome God and I know that both of you are fully leaning on Him.

May God bless you richly and I will continue to keep you in my prayers. Much love to everyone.

Cindy Griffin & family

Anonymous said...

Well, I'm glad to hear that God answered many prayers so far and that she felt better today and was able to "make it through!"

I'm glad that yall decided to go home for the surgery..there is truth to Dorothy's famous statement, "There's no place like home!"

As hard as it must have been to make that decision, I'm sure your family and friends in NC are relieved so that they can "be there for you" and have some more serious hugs and kisses!!!

We will continue to pray for wisdom for the surgeons and that the node is easy to reach and easy to remove!

We will also pray for a nice, relaxing, even lazy day tomorrow enjoying being together..maybe you can even sleep in (is that possible for parents of 6 or is your body just too conditioned to wake up every day at 4:30?) Well, maybe you can still get up, have some breakfast and then go back to sleep??!!!!

Love yall...
The Fuller's
Auburn, AL

Anonymous said...

Tony and Dee Dee...just a quick note to let you both know that Kim and I are continuing to pray for you. I also thought you'd like to know my BSF group, Kim's Tuesday night prayer group, and our Sunday School class are holding you close and are lifting you up in their prayers as well. Even though you're away from home, I assure you that God's unfailing Grace and Love are surrounding you and I pray his warmth is comforting you during this time. I am glad you will be coming home soon and look forward to giving you both a big hug. You are both an inspiration to me and continue to show other Believers why the Kingdom of Heaven is Rich with Glory. Your Faith, your Witness and your friendship are wonderful examples of God's perfect Love for each of us. I know God's word is true and I know his hands can heal. We love you and look forward to standing by your side during the coming weeks. In His Hands we are...John (& Kim) Powell

Anonymous said...

Hi Tony,
I have been praying for you guys all day-- thanks for the update. I feel compelled to give you some information that Mike and I found extremely helpful when he was diagnosed with leukemia. It's a REAL long story, but anyway, her name is Karen Hurd and her website is nutritionhelpguide.com. She is a nutritionist, and her story is rather interesting. Anyway, desperate as I was (I'm sure you understand), I called her on the phone and was amazed at her success rate with Stage 4 brain cancer among other things. Sounds weird, I know, but I have always vowed that if ever I get cancer, I will talk to her first. I love you both.

Cindy Walker

Anonymous said...

Dear Tony & Dee Dee,
All day I've had you in my mind & heart, lifting you up & laying you down at the feet of Christ, our Lord. I kept thinking that you must be very busy, and that lots of decisions might have to be made --- but with no idea you'd have to make them that quickly. We have to trust that all the prayers for wisdom & discernment were being answered as you made tough choices this afternoon. Your status as a loving family, concerned not only with your individual well-being, but with that of your children, is part of what makes you the wonderful people that I see.

Thanks to God for your feeling better today, Dee Dee, despite the claustrophobic scan.

I wish I could give you some hints for things to do in Rochester, but I would agree from my short visit, there's not a lot ... and you didn't plan for sight-seeing anyway. Perhaps this will be time for the two of you to spend together without being in the midst of medical testing.

Continue to be wrapped in the love of your family and friends, and as you said earlier, "bathed in prayer."

"We have waited eagerly for the Lord; he is our help and our shield. In him our hearts are glad, because we have trusted in his holy name. Lord, let your unfailing love rest on us, as we have put our hope in you." Psalms 33: 20-22

Peace & rest & love to you both tonight, and a good day tomorrow.
Love you,
Linda Lee

Anonymous said...

Tony and Dee Dee
Our hearts and love go out to you. We know God is holding you in His arms and has prepared the way for you. We are praying for you and your children as you come home and share the news. Our prayer is that the Lord will take this cup from you. And if He allows this to continue - for strength and courage. Keep your eyes fixed on Him and the hope that lies in Him.

We will pray for the doctors and for wisdom for you both. God has already made provision for whatever you need. Many are praying and willing to help.

We want to love you, comfort you, and be an instrument of God's love in your life. Continue to lean on Him. We are praying without ceasing.

I Cor 1:7 "And our hope for you is firmly grounded, knowing that as you are sharers of our sufferings, so also you are sharers of our comfort."

God is your hope and comfort.

Love in Christ - dear friends,
Art and Sydney

Anonymous said...

Dee Dee and Tony,
Glad you're through the testing and glad you're coming home. I'm praying Psalm 23 for you today, that the Good Shepherd will lead you beside quiet waters and restore your soul. We love you, but He loves you more! Can't wait to see you both.
Warren

Anonymous said...

Hi Tony & Dee Dee,
We learned Dee Dee's health issues last week and we are taking them to the Throne. We hold you close to our hearts and in our prayers. No matter where we worship, we are still the body of Christ. We love you and pray for a miracle healing in your life Dee Dee.
Love in Christ,
Gwen & Jeff Brodd

Anonymous said...

Tony and Dee Dee,
I was chatting with Samara (spell?)last year at TCBS and asked if she remembered that she had caught chicken pocks from Matt when they were 5, and was very mad at him for it! And except for a few pool sitings long ago, that has been the only contact we had had for much too long. Your tiny kids have grown into such beautiful students! I was so sorry to hear about all this. Cancer stinks, and we will pray for all the big and small things that you're facing.
Love, Andy and Meg