I'm sorry that it has been a few days since the last post. Nothing has happened medically, and normal life has been pretty busy. However, with the time lapse, there's a lot on my mind, so this could spin into a long one (sorry Kim)!
Let's go medical first. If you remember, Dee Dee suffered a seizure in January this year. She awakened me at 4:30 in the morning with the seizure, and we spent the next two weeks getting her head scanned and tested in every imagineable way. Bottom line: no cause found, "pretend like it didn't happen." Well, I got to thinking that maybe this lymph node, because it presses against her phrenic nerve (the one that operates her left diaphragm, the muscle that makes your lungs work correctly), could it have initiated the seizure? I talked to her neurologist today, and he said that the lymph is almost certainly the cause of the seizure. However, my logic was off a bit; he thinks that because it is on the heart, it started an arrythmia that triggered the seizure. Either way, it is more evidence that the thing must be removed! Now, more than ever, we are opposed to the biopsy approach.
More medicine: we start tomorrow at 10:30 at Duke for (yet more) bloodwork. Then we meet with Dr. Jennifer Garst, the pulmonary oncologist. Here is where there is a huge praise! We have a friend at church who works at Duke Med. She knows Garst personally, and affirmed to us that she is a terrific doc, and a very nice person. Unfortunately, she is not a surgeon. She is a cancer doc, and maybe a biopsy doc. We were quite bummed, because that basically would have meant at least another week of waiting. Well, our friend told Garst our story, including Mayo's recommendation to skip the biopsy and just go straight to surgery. Garst responded with a recommendation on her favorite thoracic surgeon at Duke, and took it upon herself to get him to meet with us tomorrow as well. His name is Dr. Thomas D'Amico, and we meet with him whenever we finish with her. It may not seem like a huge deal, but I gotta tell you, for the Clarks right now there's not much that could have been better news. Our heartfelt thanks to Julia P. for helping us here! More, though, is our sincere thankfulness to God for orchestrating the daily events of our lives to accomplish his good purposes.
Last medical update for the day (hopefully many more tomorrow): I'd like to explain the surgery that was proposed at Mayo. If you take your left hand and make a fist, with the thumb pointing up, hold it in front of the middle of your chest. The fist is the heart, and the thumb is the aorta. Her node sits on top of the fist, leaned against the thumb. In front of the node is the phrenic nerve, that controls the diaphragm. To the right of the node (I think I'm correct here) is the nerve that controls her voice box. The danger of trying to biopsy is that one of those nerves could be accidentally damaged. So, the head thoracic surgeon at Mayo proposed to do a sugical procedure in which he makes a ~5 inch incision in her left side, probably breaks 2 ribs to gain access, and goes to the tumor that way. If he can adequately visualize the tumor/heart/aorta/nerves, he would remove the tumor in this fashion. This also would be dependant upon the tumor being "encapsulated" as opposed to a tumor that is "growing roots." If he cannot see well enough, or if it is rooted into the heart and aorta (like ivy growing on a wall), then he would change and make an ~8 inch incision in the center of her chest, saw through her sternum, and split open the ribcage to almost do open-heart surgery. The first surgery would hurt really badly for ~ 3 days, with hospitalization for 4-5 days. If he has to change gears, we are dramatically increasing the length of recovery.
Obviously we are praying for the least-invasive, lowest-risk surgery that will succeed. We pray that that docs at Duke agree with this approach, and that for a change the two sets of medical experts agree on the correct treatment. We pray that the lesser surgery will succeed. We already pray that her surgery would be without complication, that her life would be protected, her heart and aorta safe, and her nerves undamaged. We pray for a fast recovery, and that the pain would be less severe than they anticipate. We pray that we can do it at Duke, but if things just aren't "right" at Duke, we have decided that we would return to Mayo for the surgery. We pray that we leave Duke tomorrow with firm answers and dates.
Now on to non-medical. People have been graciously, wonderfully supportive in prayer, words, notes, and deeds since this started. We are blown away by the goodness and love of the body of Christ! One of the things that folks keep asking is, "I know how her health is, but how are you both doing otherwise?" I can honestly say that we are doing better than anything that makes good sense. I have yet to detect any anger or despair in either of us. There is no lack of faith; we are perfectly content to be in the center of His will and plan for our lives, and for our kids' lives. We are encouraged daily by His word, your prayers, and our love for one another. We are actually excited by the opportunity to parent our children through this time, because we know that it can be a time where God does amazing things in and for them, too. I told Caleb and Samara the other night that while Dee Dee and I don't want to "Waste her cancer" as Piper put it, our kids shouldn't waste their mom's cancer, either. This will be the seminal time in their adolescence that they will remember their parents actually living out their faith. For them, it may be the most visible time in which our faith was not just theoretical, but real. How great is it to be able to recognize that opportunity, not just have it lazily drift by? The heat of this moment forces us to recognize it, and for that we are thankful.
Don't get me wrong! There is certainly fear (of the surgery, of the pain, of the outcome, of all sorts of things); this is scary stuff. There are many sleepless nights; I haven't slept more than about 4 hours in a night since we found out she had cancer 6 weeks ago. There are more stress-related headaches than we usually have in a year. We wrestle with patience with our kids more, and I wrestle with patience with work issues more than usual. It is just that these things exist inside an over-arching awareness of the sovereignty of almighty God.
So why are we doing well? Why aren't we falling apart at the seams? How are we getting out of bed each day, instead of simply lying there holding each other? This is a living definition of faith. As Dee Dee told our small group Sunday night, faith is choosing to live as if the God of the Bible is real and His word is actually true, even when our emotions don't feel like it. When we do this, our hearts will follow our heads. What do our heads know to be true here? It is just this. God planned from before time that Dee Dee would have cancer in 2006 A.D. This has always been in His design for us, it is under His control, and it is not surprising Him nor stretching His ability to govern it. And because our Lord is also our Father, He loves us too much to let us get to this place unprepared! He not only planned the cancer, but He planned every event, every encounter, every relationship and conversation, even our childhood enjoyment of science which led to medical training, so that when we got here we would not drown. Not only will we get through it, we will triumph, because this is the God we serve.
Why is this so? FOR HIS OWN GLORY. Not for our own praise, but for His. Several have mentioned how amazed they are at our attitudes, or how proud they are of our strength. This is kind, and I thank you. I know the intent of the words, which is to encourage; it does! But remember, I will not boast in anything, save Christ at work in me. Trust me, Tony Clark is not man enough nor Christian warrior enough to handle Dee Dee having cancer and be anything but a babbling idiot. BUT, through Christ we are victorious; through Him we don't just get by, we excel. In Him we live, and move, and have our being. Not for our own glory, but for His.
This cancer was ordained by our Father for our good and His glory. And that is true, no matter the medical outcome from this whole thing. We pray that He will allow this cup to pass, that her health will be restored quickly, and that we soon we are looking back on this time as a closed chapter. But no matter what cup He has for us, we will drink deeply. To do otherwise would be to deny that He is good, to deny that His promises to perfectly love and to always do the best thing for His children are false, to call Him a liar. Our God is true, and trustworthy, and gracious to His chosen people. Never let us doubt the goodness of God!
Finally, I just wanted to mention one of the ways that God has sustained us. Exactly ten years ago our infant son was lying in a hospital bed, desperately ill. The medical team told us that he had about 24 hours before he would slip into a coma, and another 24-36 hours before he would die. He was the third patient in medical literature to have his specific diagnosis, and the first to recover. Today, our faith is strengthened every time we look at 10-year-old Gabe. He is healthy, and sweet, and kind, and bright. He is insightful, loves deeply, trusts God, and thinks the world of his siblings. He is funny, plays drums, is easily distracted, and hates clowns and pigs. In short, Gabe is your classic boy. Every time we look at him, we are confronted with living, breathing proof that our God is able to do whatever he chooses, whenever He chooses, however He chooses. How could I doubt this same God now? If I look at Dee Dee and begin to lose faith, all I have to do is look at Gabe and my heart rejoices.
So, thank you God for being miraculous. Thank you friends and family for being earnest and faithful in your prayers and support. We look forward to seeing the miracles that He works in this time, and to rejoicing with you as He does. I will update everyone tomorrow after we find out more.
Tony
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6 comments:
Tony and Dee Dee (and Ann!),
You are forgiven for your wordiness! Although, today it just didn't seem that long as it was good to see you writing again.
We have had several people that you do not even know praying for you this week. That have remembered on their own to ask and called to get updates. Evidence that we are part of an amazing body of believers that loves and supports each other.
I was in Psalm 112 today and prayed v. 6-8 for you.
"Such people (the godly)will not be overcome by circumstances. They will have no fear of bad news, they confidently trust the Lord to care for them.
They are confident and fearless and can face their foes (cancer) triumphantly."
Love you all,
Kim and John
Tony and Dee Dee
How God has blessed you during this time - to be faithful to Him, to admit our human frailties, and to love Him always. How God will work in the lives of your children. We continue to pray without ceasing for each member of your family and loved ones. God knows - and He is using this in all of our lives - to encourage our faith, to grow our faith, to depend on Him in all things. We love you and are watching moment by moment for God's continued work in this situation.
Love
Art and Sydney
Amen and Amen, brother!
Dee Dee, take heart in knowing that nothing in all creation can separate you from the love of God that is in Christ Jesus our Lord. He is for you...as are all of us in our prayers on your behalf.
Much love,
Warren
Thanks so much for the update. And thanks for sharing how God is real to you and how you are relying on Him and trusting in His soverignity. You are an encouragement to me. We continue to pray.
Susan H. (from Slovakia)
Dear Tony and Dee Dee,
Well, God is good, isn't He? I am inspired by you both. I wake up in the middle of the night and lift you up. One of my boys asked me not long ago, "Mom, how do you know that God is real?" I said, "Son, the longer you walk with Him the more He will convince you of His presence and you will see His hand working in your life." You two are living proof that the Lord, indeed, is on the throne. What a blessing you are, and He is truly faithful.
Cindy Walker
Tony & Dee Dee,
Praise God that your day went so well! You are in our prayers and we know the Lord has you in the palm of His hand of love that still bears the marks of our redemption. We are praying that the surgery is a complete success and that this node is negative.
in Him
Greg & Ruth Viehman
Deuteronomy 31:8
And the LORD, He is the one who goes before you . He will be with you, He will not leave you nor forsake you; do not fear nor be dismayed."
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