Thursday, October 19, 2006

Coming home, many questions

We are in Minneapolis, just waiting until time to head for the airport now. We just had a long talk about the whole trip, trying to summarize things while they are still fresh, making sure we are together in our thoughts and feelings.

Sadly, we are coming home with more questions than we had before. The two centers are absolutely of different opinions on the stomach; Duke still wants to do the stomach surgery, and Mayo still says the stomach is safe. We don't know what the lymph node is. There is one radiology report that suggests that there is a second, smaller lesion about 6 inches lower than the big lymph, but we are not sure if that is just a poorly worded reference to the big lesion, or actually is a second lesion. It comes from the PET scan, but does not show up on the xray or CT; the big one shows on CT and octreatide, but not on PET.

The last time we talked to Duke, they still want to try to biopsy the node. The folks up here feel that would be a waste of time, and putting Dee Dee at risks that she does not need to undergo. Duke's point is that a biopsy carries less risk than surgery, less pain, and might allow her to skip the surgery altogether. Mayo's point is that the thing is too big to leave in there, no matter what it is, so skip the biopsy with its risks, and just get it out. All agree that it is most likely cancer, but until we get it under a microscope we will not know what type.

(By the way, as I write about my wife and cancer and surgery and risks, I still feel a lot like getting sick. It is a very schizophrenic feeling, letting the medical part of my brain relay facts, while all other parts of me want to scream and run around in circles!)

Emotionally, Dee Dee is very low. She is feeling some sense of failure and guilt because of not getting it done while here, allowing the questions to remain. She is flat out scared of the answers. Not in a weak, immature Christian way; more like a "I am not afraid to die, but I want to watch my children grow up, and I want them to be with me as they do; I don't want my husband to suffer through that now." I think that a big part of her hesitation at doing it here was the real possibility that she could have had a serious problem secondary to surgery here, and her children not able to come to her in time, and her husband going through it alone.

I keep assuring her that we made the right decision, and that it was not hers to make but mine. I still believe it was the right decision, and we will simply plan to get the answers to these questions back home. It will just take a bit longer. Pray for her mind and emotions as much as you do her health. Our adversary is working overtime on her mind right now. Pray that I am able to understand and empathize, to connect in the ways she needs me to connect.
Pray also that things could happen quickly at Duke, and that at least on the node they would be in agreement.

Thank you all for your encouraging words. We read them together often. Thank you for your physical aid as well. Thank you for praying; we know that we are covered in the prayers of our brothers and sisters, co-laborers in the Kingdom, joint heirs with Christ. We know that we are being prayed for by our great High Priest, who longs to intercede on our behalf. These are the things that are true, and praiseworthy, and commendable. Praise God for them, and for you.

Tony

11 comments:

Anonymous said...

Dee Dee & Tony:

Just a quick note to say we're still praying and believing. I am not going to pretend that I'm not worried about the outcome, but I do know that God works miracles each and every day. That is my prayer for both of you (as well as the rest of your family). I pray for a safe trip back to NC also. May God guide you all the way.

Love & Prayers,

Cindy W. Griffin

Anonymous said...

Dear Tony & Dee Dee,
I'm selfishly glad you're coming home ... and won't pretend to try to second-guess you. We have prayed for wisdom & discernment, and must trust that God has (and will continue to do so) answered those prayers.

As far as that screaming & running in circles bit goes, I understand completely --- that can be an almost paralyzing feeling, even when you keep moving because you must. I see that Ann has offered for you to do so near her house; if you need something closer to Duke, my neighborhood would work, too! I suspect it's unlikely you will actually take either of us up on the offers, but know that we love you enough to be serious.

I pray for your peace and comfort of family & friends especially as you return home, that you will feel the arms of the Lord in human form, and hear His words in our voices.

"Have no fear, for I have redeemed you; I call you by name; you are mine. When you pass through rivers they will not overwhelm you; walk through fire, and you will not be scorched, through flames, and they will not burn you. I am the Lord your God, the Holy One of Israel, your deliverer; I give Egypt as ransom for you, Nubia and Seba in exchange for you. ... Have no fear, for I am with you." Isaiah 43: 1b - 3; 5a.

His love surround you, now and always ...

Love you,
Linda Lee

Anonymous said...

DeeDee,

Children are a mother's own medicine. I know your heart will surge when you feel all 12 arms around you! We are aching for both of you and the decisions you face. We will continue to lift you up to our heavenly Father. We love you all!
Lucy

Anonymous said...

Dee Dee and Tony,
All of your thoughts and emotions are part of being human, but your hope in Christ still shines through. Dee Dee, in my very unofficial opinion I think you made the right decision in coming home to be treated. I am so thankful that you have the best doctors in the field caring for you. But, if two of the finest medical institutions available have totally different plans for treating this, then I assume that one of them doesn't know the best thing to do. There is ONE who does know the perfect plan and HE is on your side. God can work through, in spite of, or even totally against the wisdom of doctors (even really smart ones!). You made a decision based on what you think God wants you to do - "The fear of the Lord is the beginning of wisdom, and the knowledge of the Holy One is understanding. Prov. 9:10."
We will pray that God will strengthen you spiritually, physically, and emotionally and that He will continue to guide you with His wisdom. As someone else wisely wrote, some of your best medicine for recovery will come from being close to those you love.
Stacy

Lincolnahbe said...

We love you
-- Link&Christy

Viehman Family said...

Dee Dee & Tony

Romans 8:29-30
For whom He foreknew, He also predestined to be conformed to the image of His Son, that He might be the firstborn among many brethren.30 Moreover whom He predestined, these He also called; whom He called, these He also justified; and whom He justified, these He also glorified.

Notice it says glorified not in the future but past tense. In a way we cannot understand its all already over. This includes this trial.

May the LORD give you wisdom in your decisions, pecae in your heart, and protection in the Spirit.

Love Greg & Ruth Viehman

Anonymous said...

Tony and Dee Dee,

We love you guys so much and will continue to pray not only for Dee Dee's health, but her spirits. You guys did the right thing by going home. You need your family and friends as much as they need you!

Love and Prayers

Kevin and Jessica

Kim said...

I just wanted to let you know that our family is praying for Dee Dee and your sweet family. I know Donna through CCAI(our adoption agency)-through an email list we are on. I read your blog from hers and she had shared with me what you are going through. We are praying for a complete healing,but we also know that God's will,whatever will bring Him glory should be done. May you remian steadfast and faithful to God's goodness in your lives. We pray for your children,that they will love God even more through this trial,knowing that He is taking care of you guys. We,also pray for the doctors....that God would grant them wisdom and knowledge so that Dee Dee will be cured.

With Chritian Love,

Kim
www.lifeong-kim.blogspot.com
www.myadoptionwebsite.com/lydia

Anonymous said...

Dee Dee & Tony,

Just found out about Dee Dee's cancer and possible up coming treatments. Just want to let you know you are in our thoughts and prayers. I have tried to contact as many of your "Tarboro" friends as possible. If you think of anything we can do from this end, feel free to contact us!

Gob be with you!
Lots of Love and Prayers,
Brian & Davona Parisher

Anonymous said...

Dear Tony and Dee Dee,

Lorraine McNeil just told me about Dee Dee's tumor. I have read your blog and we will be praying for God to grant you wisdom, peace, comfort and healing. We are all part of God's great family and share your pain in a very unique and personal way. Only those who are part of God's family can truly understand this.

Above all else, don't stop praising our great and awesome God for His unfailing love.

With heartfelt prayers,

Brian and Bonnie

Jessica said...

I just wanted to let you know that I am praying for your family. I am a friend of Donna's from our adoption yahoo group. She has shared the info about Dee Dee with me. We will keep you in our thoughts and prayers. I will be sure to keep checking your blog. You all are a lovely family.
Jessica